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South West Rare Disease Policy Group Forum
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Ask for Advice
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Ask for advice from the community
In this section you can ask advice from our community and scientific experts, either about a condition that you have, or a condition relating to a friend or family member. If you feel uncomfortable sharing your question, you can always email us.
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Share your Story
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Share your experience with us
Tell the community about your journey. What is your condition? When were you diagnosed? What has been the hardest part?
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