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South West Rare Disease Policy Group Forum

Introductions
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Introduce yourself

Introduce yourself and say hi to the rest of the community

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Ask for Advice
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Ask for advice from the community

In this section you can ask advice from our community and scientific experts, either about a condition that you have, or a condition relating to a friend or family member. If you feel uncomfortable sharing your question, you can always email us.

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Share your Story
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Share your experience with us

Tell the community about your journey. What is your condition? When were you diagnosed? What has been the hardest part?

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